Umndeni kaBruce Willis unqume ukulungisa isimo sawo sansuku zonke ukuze uphendule ekuxilongweni kwakhe okuthuthukayo kokuwohloka komqondo we-frontotemporal, ukubeka kuqala izinqubo ezinzile kanye nendawo ezolile yawo wonke umuntu. Kulo mongo, umlingisi manje uhlala endaweni eguquliwe, nethimba lochwepheshe elitholakala ngokuqhubekayo ukuze aqinisekise inhlalakahle nokuphepha kwakhe, ushintsho alufunayo. ukunciphisa ubungozi futhi kunciphise izisusa ezingadingekile.
U-Emma Heming Willis uchaze ezingxoxweni ezehlukene ukuthi lesi sinyathelo sihlose ukulinganisa ukunakekelwa komlingisi nempilo yesikole nempilo engokomzwelo yamadodakazi akhe, ukugcina izikhathi zomndeni ezifana nesidlo sasekuseni noma isidlo sakusihlwa noyise noma nini lapho kungenzeka. Unkosikazi wenkanyezi ye-Die Hard ugcizelela ukuthi uBruce ngokwakhe ubengathanda ukuthi amantombazane akhe angaboni ukushintshwa kwawo okujwayelekile, yingakho isinqumo sokuthi indawo ethulile egadwa amahora angama-24 ngosuku.
Yini i-frontotemporal dementia (FTD)
I-Frontotemporal dementia iyiqembu lezinkinga ze-neurodegenerative ezithinta ngokuyinhloko izimbobo zangaphambili nezesikhashana zobuchopho, ezinemiphumela eqondile kubuntu, ukuziphatha, kanye nokuxhumana. Ngokungafani nokunye ukuwohloka komqondo, ezigabeni zokuqala, izinkumbulo ezithile zamuva zingase ziqhubeke, kuyilapho ziba sobala kakhulu. izinguquko zokuziphatha kanye nobunzima bolimi.
Kuyisifo esiyivelakancane eqenjini lezimo zokuwohloka komqondo futhi ngokuvamile sivela lapho umuntu esekhulile, enezinga eliphezulu eliphakathi kweminyaka engama-40 nengama-60 ubudala. Imvelaphi yayo ihlotshaniswa nokuqoqwa okungavamile kwamaprotheni alimaza ama-neurons futhi, ngenani elibalulekile leziguli, kunengxenye yofuzo; kunoma yikuphi, ukuziphendukela kwemvelo kancane kancane futhi ngokuqhubekayo phakathi neminyaka.
Kunezindlela ezimbili ezinkulu zokwethula: ukwehluka kokuziphatha (okunoshintsho ekuqalisweni, ukwahlulela komphakathi, noma uzwela) kanye ne-aphasia eqhubekayo eyinhloko (enezinkinga zokuthola amagama, ukuqonda, noma ukwakha imisho). Le phrofayela ichaza ukuthi kungani eminye imindeni ibona izinguquko ekuxhumaneni nomphakathi ngaphambi kokulahlekelwa yinkumbulo, njengoba kunje ukuwohloka komqondo onezimpawu ngaphandle kwe-Alzheimer's evamile.
Ngaphandle kwezici zokuqonda, izimpawu zomzimba ezinjengokuqina noma ukunensa kokunyakaza, ukuphazamiseka kokulinganisela, ubunzima bokugwinya, noma izinkinga zokulawula i-sphincter zingase zivele ezigabeni ezithile. Iziqondiso zemitholampilo zigcizelela ukuthi, nakuba okwamanje zingekho izindlela zokwelapha zokwelapha, le ndlela ihlanganisa ukwesekwa kwezempilo nokwezenhlalo londoloza ukuzimela, ukuphepha kanye nezinga lempilo.
Ukusuka ku-aphasia kuya ku-FTD: ukuthi impilo yakhe yansuku zonke yashintsha kanjani
Umndeni uqale wabika ngokutholakala kwe-aphasia, okwathinta ikhono lengane lokuzwakalisa nokuqonda ulimi, futhi kamuva kwaqinisekisa ukuwohloka komqondo ongase ube sengozini. Ngaphambi kokuba basho okwakwenzeka, ukungezwani nezinguquko ezicashile zase zibonakala ekhaya: izingxoxo ezazingagelezi njengoba zazinjalo ngaphambili, noma ama-nuances okuxhumana alahlekile, okwathi emazwini ka-Emma kwakufana nokuhleba okuphikelelayo okuthi ngokuhamba kwesikhathi, yembula umsuka wayo wangempela wezinzwa.
Lesi sigaba sokungaqiniseki saba nesisindo ebuhlotsheni: waze wahumusha ukuthi isibopho sasiwohloka ngenxa yezizathu ezizwelayo, ngaphandle kokwazi ukuthi kwakuyisimo somtholampilo. Umbhali uke wabika ukuthi waze wacabanga ukuhlukana, enesiqiniseko sokuthi umlingani wakhe useshintshe ngendlela engaqondakali, kanti empeleni wukugula obekubangela ukugula. yayishintsha ukuziphatha kanye namakhono.
Ngokuqinisekiswa kwezokwelapha, umuzwa wawungajwayelekile: ubuhlungu bokuxilongwa kanye nempumuzo yokuyiqonda. Ukuqonda ukuthi bekunembangela engokwemvelo ngemuva kwalezi zinguquko kwasivumela ukuba sihlele kabusha ikhaya, sehlise ukuqapha kwethu ngokomzwelo, futhi sifune usizo olukhethekile. Kusukela lapho, umkhaya ubulokhu ulungisa izikhathi, ukuvakashelwa, nemisebenzi vikela izikhathi ezizolile futhi unciphise ukucindezeleka kwemvelo.
Nakuba ukuziphendukela kwemvelo kuyahlukahluka, indawo eseduze ichaza izikhathi zokunethezeka okukhulu nezinye zokunqanyulwa okukhulu, okuyinto evamile kulolu hlobo lokuwohloka komqondo. Bayavuma, isihluthulelo siwukunikeza ukusekela kwesiguli, ukulondoloza izinqubo eziwusizo, nokuphendukela kochwepheshe lapho izidingo zingaphezu kwalokho okunganikezwa yikhaya. ngaphandle kokusekelwa okuqondile.
24/7 ukunakekelwa kanye nokuzivumelanisa ekhaya
Uma kubhekwa inkimbinkimbi eyandayo yesithombe sakhe somtholampilo, uBruce Willis uhlala endlini enesitezi esisodwa eduze kwekhaya lomndeni wakhe, enakekelwa ithimba lokunakekela unomphela. Ukuzikhethela kusekelwe ezimisweni zokuphepha (ukugwema izitebhisi nezithiyo), ukulawula okugqugquzelayo, kanye nenhlangano yokunakekela, konke ngenjongo yokuhlinzeka indawo engabikezelwa, ethule, nephephile.
Emadodakazini, izikhathi zansuku zonke noyise, njengesidlo sasekuseni nesakusihlwa, ziye zagcinwa, zahlanganiswa nezinhlelo ezivumela isikole, ubungane, nemisebenzi. Ngale ndlela, umkhaya ulondoloza ukuxhumana okungokomzwelo ngaphandle kokuyekethisa ukuphumula nokuzinza isiguli esikudinga kakhulu, ukukuthola. ukugadwa kochwepheshe ubusuku nemini.
Isinqumo sasisekelwe ezincomweni zezokwelapha ezazigxile empilweni yomnakekeli oyinhloko kanye nobungozi bokugcwala ngokweqile. U-Emma Heming uvumile ukuthi ukucela usizo akukona ukwehluleka, kodwa kuyindlela eqotho yokugcina ukunakekelwa ngokuhamba kwesikhathi nokunciphisa izimo ezibucayi, uma kubhekwa lokho. I-DFT idinga ukungenelela okuqhubekayo nokuhleliwe.
Ngokwezinga elingokoqobo, ochwepheshe bokuwohloka komqondo batusa iziqondiso ezilula, ezinethonya eliphezulu: ukusondela usuka eceleni kunokubheka phezulu ukuze ugweme ukungqubuzana, ukukhetha izingubo nendawo ezungezile ezingadali imfuhlumfuhlu obonakalayo (njengokugwema omacabha abamnyama abangabonakala njengezimbobo), ukususa izingozi endleleni, nokusungula imizila ecacile. Lawa mathuluzi, kanye nokuqeqeshwa kwabanakekeli, ngcono ukuxhumana nokuvikeleka ekhaya.
Ngobufakazi obukhona, izinhlangano eziholayo ziphikelela ngokuthi okwamanje alikho ikhambi le-FTD. Ngakho-ke, ukugxila ekwelapheni kusezinhlelweni zokusekela, ukwelashwa ngokomzimba nokukhuluma lapho kufanele, ukuphathwa kwezimpawu zokuziphatha, kanye nezinsiza zomphakathi. Umndeni kaWillis uthe uyathembela ocwaningweni lwekusasa futhi, okwamanje, uzibophezele kulo ukuqwashisa nokwabelana ngokufunda.
Izwi lika-Emma kanye nencwadi ehambisana neminye imindeni
Encwadini yakhe entsha yesikhumbuzo, Uhambo Olungalindelekile: Ukuthola Amandla, Ithemba, kanye Nawe ngokwakho Endleleni Yokunakekela, u-Emma Heming ubhala ngohambo olusuka ezimpawini zokuqala kuze kube manje, ngamathuluzi abanye abanakekeli. Ulandisa ngomthelela ongokomzwelo wokuxilongwa, ukudideka kokuqala, nendlela yokuguqula lokho okuhlangenwe nakho kube isiqondiso esisebenzayo kulabo ababhekene nakho. inselele efanayo yokunakekelwa kwesikhathi eside.
UHeming uyavuma ukuthi, ekuqaleni, isiqondiso sasiyivelakancane futhi kwadingeka azifundise, into eyamshukumisela ukuba akhulume ukuze akhuthaze ukuxilongwa kusenesikhathi kanye nokufinyelela ezivivinyweni zomtholampilo noma nini lapho kungenzeka. Umgomo wakhe uwukuba imindeni eminingi ifinyelele izinsiza zokusekela ngokushesha futhi yazi ukuthi ayiyedwa, ngoba Umthwalo wokunakekela wenziwa lula ngamanethiwekhi nolwazi.
Umbuthano oseduze kaWillis—okuhlanganisa namadodakazi akhe namalungu omndeni aseduze—bekuwukhiye ngalesi sikhathi. Le nethiwekhi, ehlanganiswe nethimba lakhe lochwepheshe, imvumela ukuthi abelane ngemisebenzi futhi agcine impilo yakhe yansuku zonke enengcindezi encane, egcina amabhondi kanye nesikhathi sekhwalithi esisele. isikhungo sempilo yomndeni.
Indaba kaBruce Willis kanye nethimba lakhe lishiya isifundo esicacile: ukuqonda i-FTD kushintsha izinqumo nezinto eziza kuqala, futhi ukutshala izimali ezindaweni eziguquguqukayo, ukusekelwa kochwepheshe nolwazi oluthembekile kwenza umehluko ezingeni lempilo yesiguli kanye nabanakekeli baso; indlela eyinkimbinkimbi lapho ukubekezela, ukubekezela kanye ukuxhumanisa umndeni nempilo Zibaluleka.
